Motor Neurone Disease (MND) Awareness Month, June 2016

The month of June is dedicated to raising awareness of MND

Each year the month of June is dedicated to raising awareness of motor neurone disease (MND) and the work of the MND Association. Their campaign this year, Shortened Stories, is working to raise awareness of the devastating impact of motor neurone disease. This fatal and still incurable condition kills more than a third of people within a year of diagnosis, and more than half within two years.

We regularly see MND patients at LOROS and below we have provided more information about the work we do together with stories from some of our MND patients.

LOROS Hospice runs the Leicester, Leicestershire and Rutland Motor Neurone Disease (MND) multidisciplinary team clinic at LOROS twice a month on a Tuesday. Our team aims to support MND patients, their families and carers and address the issues that are important to them. These may include:

  • Reviewing patients’ medication
  • Providing practical advice on managing symptoms
  • Coordinating the provision of equipment
  • Planning for the future

For more information, see our patient information leaflets

We have been providing specialist education and training to health and social care professionals for the past 10 years. View our online prospectus for more information on courses around MND.

We undertake research into several areas, including innovation in palliative care services. Read about our research into Exploring MND Experiences

Patient stories

Some of our MND patients have kindly shared their stories with you, to help raise awareness of MND throughout the month of June. You can find all of their stories below.

If you wish to share your experience of LOROS please email

Chris Allen

I’ve had a great life. I’ve travelled the world and it’s been wonderful but that doesn’t make having Motor Neurone Disease any easier

- Chris Allen

Read the full story

Chris Bird

One of the best things was that we knew he was safe there and he didn’t mind us going, he felt so comfortable at LOROS; and we never felt guilty for leaving him.

- Chris Bird

Read the full story

Tony Edwards

“I noticed a problem with my left hand, it started to develop a slight shake and I was losing control of my grip. I knew what it was straight away. I had Motor Neurone Disease.”

- Tony Edwards

Read the full story

Claire Cunnington

“You have Motor Neurone Disease” he said. I stared at the doctor then looked down at my bump. I was eight months pregnant. Why was this happening now? Why was this happening to me?

- Claire Cunnington

Read the full story

How you can support MND Awareness Month

Donate now to help us raise the £7.7 million it costs us every year to keep delivering our services.

You can also donate via your mobile. Simply text CARE24 and the amount to 70070. So to donate £5, all you need to do is text CARE24 5 to 70070. It’s that simple and you will receive an instant thank you!

If you would like to find out more, please call (0116) 231 3771 or email