Motor Neurone Disease (MND) Awareness Month, June 2017

The month of June is dedicated to raising awareness of MND

Each year the month of June is dedicated to raising awareness of motor neurone disease (MND) and the work of the MND Association. This fatal and still incurable condition kills more than a third of people within a year of diagnosis, and more than half within two years.

June 5th - Information sharing for staff and volunteers

This year LOROS will start the awareness month with a display and information station in the Social Area of the Hospice for staff and volunteers on Monday June 5th. This will be a great chance for people to learn more about MND, have the opportunity to ask questions and to indulge in a cream tea!

MND staff and MNDA volunteers will then take to the road on LOROS local to meet the public to continue to raise awareness of MND, and of the support that LOROS can offer.

In June you can find LOROS local at the following venues between 10am-3pm:

  • Tuesday, June 6th Oakham - Furleys
  • Thursday, June 8th Melton - Market place
  • Tuesday, June 13th Rothley - 10K run
  • Thursday, June 15th Leicester – Jubilee Square
  • Wednesday, June 21st Hinckley – Ullesthorpe –Palmers Garden Centre
  • Wednesday, June 28th Hinckley – Market place

1st July - Strawberry tea for patients, carers and their families

To close MND awareness month we will be holding a strawberry tea on July 1st between 1-4pm at LOROS Hospice for patients, carers and their families to come along and find out more or share their experiences of MND.

Our ongoing commitment

We regularly see MND patients at LOROS and below we have provided more information about the work we do together with stories from some of our MND patients.

LOROS Hospice runs the Leicester, Leicestershire and Rutland Motor Neurone Disease (MND) multidisciplinary team clinic at LOROS twice a month on a Tuesday. Our team aims to support MND patients, their families and carers and address the issues that are important to them. These may include:

  • Reviewing patients’ medication
  • Providing practical advice on managing symptoms
  • Coordinating the provision of equipment
  • Planning for the future

We also now have a clinic once a month for MND patients in Rutland based at the Uppingham Surgery on a Wednesday afternoon.

For more information, see our patient information leaflets

We have been providing specialist education and training to health and social care professionals for over 10 years. View our online prospectus for more information on courses around MND.

We undertake research into several areas, including innovation in palliative care services. Read about our research into Exploring MND Experiences

Patient stories

David Needham

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David Needham, 46, who is a full-time wheelchair user, will be pushing himself to the limits as he takes on the highest three peaks in the Yorkshire Dales, this August in a specially adapted Mountain Trike.

“The way I looked at it when I was diagnosed was, I have two choices, I can either give up or carry on and I never had any intention of giving up,” said David, of Cold Newton, in the Harborough district.

Read the full story

If you wish to share your experience of LOROS please email stories@loros.co.uk

Charlotte's story

“He’s my hero and I miss him every single day. Sometimes, I just want a hug from him. A day doesn’t go by where I don’t think about him but I don’t think that will ever stop and actually I don’t think I want it to stop.”

- Charlotte

Read the full story

How you can support MND Awareness Month

Donate now to help us raise the £7.7 million it costs us every year to keep delivering our services.

You can also donate via your mobile. Simply text CARE24 and the amount to 70070. So to donate £5, all you need to do is text CARE24 5 to 70070. It’s that simple and you will receive an instant thank you!

If you would like to find out more, please call (0116) 231 3771 or email info@loros.co.uk